Hi! My name is Amanda, aka Taylor's mom. Being Taylor's mama has been my greatest honor. After Taylor was diagnosed with a rare genetic condition called PURA Syndrome in January of 2018, I started this blog in hopes of providing information and raising awareness as well as sharing some of the special lessons that Taylor teaches us. I hope that you will be as inspired by Taylor as I have been and that her strength, determination, and resiliency will be motivating and encouraging to you.