Top Four Posts of 2018

Top Four Posts of 2018

I started this blog in May of 2018, about four months after Taylor was diagnosed with PURA Syndrome, a rare genetic condition affecting approximately 200 individuals worldwide. I wasn’t really sure what I wanted to do with it at the time, but I knew I wanted a quick way to update the many people who are very interested in Taylor’s life, and also wanted to bring awareness to my daughter’s condition and other rare diseases.

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Give Thanks

Give Thanks

Thanksgiving is upon us!! We love this time of year.  Our family views it as a time to come together and reflect on the blessings of the last year.  2018 has not been the easiest year for our family, considering we received a diagnosis for our daughter, Taylor, which explained her significant developmental delays, but despite that, we are trying to approach life with thankfulness and gratitude.

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Third Time's a Charm

Third Time's a Charm

I’m so proud of my girl!  Taylor recently turned three years old and we had an amazing time celebrating her third birthday with family and friends. If I am being completely honest, this is the first of Taylor’s birthdays where I felt truly celebratory. Taylor’s first birthday was not a particularly joyous time for me.  

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Coincidence or Sublime Plan?

Coincidence or Sublime Plan?

My husband and I recently decided we wanted to start the process of looking for a new home.  We have been living in a tiny two-bedroom condo for the last several years, one we bought shortly after the recession for an amazing price.  As I reflect, we weren’t even planning to buy the condo.  Back then, we were a newly married couple looking to move a little closer to the city.  We met with the previous owner, a sweet, recently widowed retiree, with the intention of renting. 

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Motherhood is Servanthood

Motherhood is Servanthood

Happy Mother's Day!  I can honestly say that I had not even thought about Mother's Day until two days ago and that is only because my husband brought up the (lovely) idea to take me out for nice child-free dinner.  Mothers and fathers deserve to be applauded and acknowledged on their respective days.  Parenthood is a 24/7 job, with few vacations or accolades.

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